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Epilepsy Australia National Helpline
1300 852 853

About Us

Who we are

Epilepsy Australia was formed in 2000 to work with and on behalf of member associations as a national secretariat.

This ethical partnering brings to Epilepsy Australia a broad understanding of the services available for people affected by epilepsy and other seizure disorders at local, regional, state and territory levels, enabling it to possess a truly national perspective that recognises the diversity and legitimacy of all Australian communities.

Epilepsy Australia Ltd (ABN 14 097 003 382) is a not-for-profit organisation and a nationally registered charity and is committed to improving the quality of life for every Australian living with epilepsy and other seizure disorders.

Epilepsy Australia is endorsed as a deductible gift recipient under Subdivision 30-BA of the Income Tax Assessment Act 1997, and is also endorsed to access charity tax concessions, as verified in the public register maintained by the Australian Business Registrar at www.abr.busines.gov.au

What we do

Epilepsy Australia is a nationally registered charity that provides services to the community including:

  • Raising awareness of epilepsy and other seizure disorders through national events, national media campaigns and state and territory events;
  • Promoting and facilitating specialist research into the medical and social aspects of epilepsy;
  • Ensuring that the needs of all people with epilepsy, their families and carers are met in the most appropriate way through the collaborative network that exists between member associations;
  • Producing quality information for all consumers seeking to better understand epilepsy and its management, such information is independently evaluated against national and state or territory disability standards;
  • Accessing the largest epilepsy library in the southern hemisphere held by member association, the Epilepsy Foundation;
  • Developing an epilepsy information kit for indigenous communities;
  • Accessing the expertise and specialist knowledge of professional staff Australia-wide;
  • Lobbying for improved access to existing services for people living with epilepsy and other seizure disorders;
  • Lobbying for increased public spending on support services for people with epilepsy and other seizure disorders.
  • Lobbying for a comprehensive understanding of all the issues faced by those living with epilepsy.

Vision, Mission, Values

Our Vision

To achieve a quality of life for all those living with epilepsy and other seizure disorders no less than that expected by the majority of Australians.

Our Mission

By working together in a genuine spirit of mutual respect and support, Epilepsy Australia's mission is to:

  1. Produce the highest quality information on epilepsy and seizures, deliver education and training programs,
  2. Actively raise awareness of living with epilepsy and other seizure disorders within communities and all levels of government,
  3. Commission and promote specialist research into the medical and social aspects of epilepsy, and
  4. Actively advocate for people with epilepsy and other seizure disorders where a national outcome is sought.

Our Values

Epilepsy Australia values

  1. Above all, the rights, integrity, autonomy, dignity and wellbeing of all people living with epilepsy or other seizure disorders, regardless of their cultural, political, socio-economic, religious or other backgrounds or affiliations,
  2. Respects the autonomy of member associations,
  3. The pursuit of the highest standards of professionalism, quality and ethics,
  4. Collaborative partnerships with government and other like-minded organizations, and
  5. Continuous improvement and innovation to bring about change.

Epilepsy Australia Members

Epilepsy Australia members are community-based organisations serving local and regional communities while advocating and lobbying for people with epilepsy at territory, state and national levels. They have experienced staff serving every state and territory. Well established, these epilepsy associations have forged strong ties with many institutions, organisations and corporations in their state or territory to further enhance the quality of the services they provide to people with epilepsy.

Epilepsy Australia members provide many services including:

  • current information about epilepsy, its treatment and management
  • counseling & personal support
  • client focused workshops & seminars
  • support groups
  • recreational programs & weekend retreats
  • advocacy & referral services
  • community & workplace education
  • membership benefits

For more information about the services offered by your state or territory member, call the Epilepsy Australia National Helpline 1300 852 853

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