Epilepsy Australia is pleased to announce the publication of the latest addition to our current understanding of SUDEP in 2011.
The editorial partnership in this second edition has been strengthened with Jane Hanna, Epilepsy Bereaved (UK) and Tamzin Jeffs, SUDEP Aware (Canada) joining editors Denise Chapman & Rosey Panelli, Epilepsy Australia, along with the International Bureau for Epilepsy endorsing and supporting the publication as part of its Golden Jubilee celebrations.
The book blends case studies with scientific advances to bring the
issue of sudden unexpected death in epilepsy to the forefront because by
learning more, we can do more.
One in 100 people worldwide have epilepsy, the neurological
condition characterized by recurrent seizures. Research studies have
demonstrated that approximately 1 in 1000
people with epilepsy per year die of sudden unexpected death in
epilepsy, or SUDEP.
The causes remain elusive, but identified risk factors include
frequent generalized tonic-clonic (grand mal) seizures, seizures that
are poorly controlled despite medication, and epilepsy requiring multiple antiepileptic medications.
People with epilepsy may reduce their risk by working with their
healthcare team to have as few seizures as possible. For some this
could mean adjusting medications or lifestyle factors, for others it
could mean exploring different avenues of treatment, such as surgery.
Written for anyone with an interest in epilepsy, Sudden Unexpected Death in Epilepsy continuing the global conversation is a SUDEP digest, presenting a current picture of SUDEP that brings together both the science and the human experience.
The collection of articles details current understanding from an
array of unique perspectives, provides insight through the sharing of
personal stories and explains the challenges of SUDEP around the globe.
This is a welcome resource to assist in the challenge to reduce epilepsy deaths, says Mike Glynn, President International Bureau for Epilepsy.
Leading SUDEP authors in the medical, legal and health professional
fields and 16 families affected by SUDEP generously contributed their
time and expertise towards this project. The long-term goal for
highlighting SUDEP is to further scientific research, to help better
understand the causes and to, ultimately, prevent these unexpected
Many SUDEP questions have yet to be answered, but the global debate continues in this book, a follow-up to the 2005 publication Sudden Unexpected Death in Epilepsy: a global conversation.
This volume, six years after the first edition of Sudden Unexpected Death in Epilepsy: a global conversation was introduced, brings the field forward by leaps and bounds, Solomon L. Moshe MD, President, International league Against Epilepsy.
Visit www.sudepglobalconversation.com to download the full text or individual articles, and follow the SUDEP global conversation as updates are posted.
Australia (surface mail) AUD 5.00 (p&h)
International Inside Asia AUD 10.00 (p&h)For orders please email firstname.lastname@example.org
Epilepsy Australia National Help Line 1300 852 8653
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More than 15,000 copies of a book that brings together global expertise
on SUDEP will have been distributed to epilepsy communities around the
world by the end of the 66th annual American Epilepsy Society conference.
Epilepsy Australia, in partnership with Flinders University is conducting an online survey exploring the experiences and needs of people who have been bereaved by epilepsy.
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