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SUDEP

SUDEP is the sudden unexpected death of someone who has epilepsy, who was otherwise well, and in whom no other cause of death can be found, despite thorough post mortem examination and blood tests. This does not include those who die in status epilepticus and those who die from a seizure-related accident.

While we are yet to understand the cause of SUDEP, we are gradually developing a better understanding of the risk factors through research conducted in recent years.

In general, the risk of SUDEP for an adult with epilepsy is low, at one in 3000 persons over a one-year period. For persons with poorly controlled seizures the risk is one in 100 persons over one year. In children, SUDEP is an even rarer occurrence with the risk as low as one to two in 10,000 over one year.

If you or your family has suffered a bereavement due to SUDEP or an epilepsy-related death, Epilepsy Australia has experienced counsellors who can help at this time.

For assistance and information, please call 1300 852 853
or email sudep@epilepsyaustralia.net


The information provided below is drawn from Epilepsy Australia's publication

SUDEP - a global conversation

This is a collection of considered observations on the many issues surrounding SUDEP by leading authors in the medical, legal and professional fields.

Written in plain English, this book is intended as a resource for those interested in gaining a better understanding of SUDEP.


Facing the questions

The questions

Facing the facts

The facts

Facing the uncertainties

The uncertainties

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Whats New:

Epilepsy & Society Symposium: 21 October 2010

The Epilepsy & Society Programme is a one-day symposium for people with epilepsy, their family, friends and carers, and for those professionals working with people with epilepsy. Run in conjunction with the 8th Asian & Oceanian Epilepsy Congress to be held in Melbourne from 21-24 October, 2010, the final programme is now available.

Excellence in Epilepsy Journalism Award 2010

Applications are now open for the Excellence in Epilepsy Journalism Award 2010 sponsored by the International Bureau for Epilepsy and UCB Pharma.

Everything Epilepsy Online Forum

Everything Epilepsy 24/7 Online Forum is a partnership between Epilepsy Australia and American-based Meningioma Mommas.

National Disability Insurance Scheme

Epilepsy Australia has joined the growing list of organisations supporting calls for a National Disability Insurance Scheme.

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