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SUDEP is the sudden unexpected death of someone who has epilepsy, who was otherwise well, and in whom no other cause of death can be found, despite thorough post mortem examination and blood tests. This does not include those who die in status epilepticus and those who die from a seizure-related accident.
While we are yet to understand the cause of SUDEP, we are gradually developing a better understanding of the risk factors through research conducted in recent years.
In general, the risk of SUDEP for an adult with epilepsy is low, at one in 3000 persons over a one-year period. For persons with poorly controlled seizures the risk is one in 100 persons over one year. In children, SUDEP is an even rarer occurrence with the risk as low as one to two in 10,000 over one year.
If you or your family has suffered a bereavement due to SUDEP or an epilepsy-related death, Epilepsy Australia has experienced counsellors who can help at this time.
For assistance and information, please call 1300 852 853 or email sudep@epilepsyaustralia.net
The information provided below is drawn from Epilepsy Australia's publication
SUDEP - a global conversation
This is a collection of considered observations on the many issues surrounding SUDEP by leading authors in the medical, legal and professional fields. Written in plain English, this book is intended as a resource for those interested in gaining a better understanding of SUDEP.
The questions
The facts
The uncertainties
Epilepsy Australia National Help Line 1300 852 8653
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